Showing posts with label borderline. Show all posts
Showing posts with label borderline. Show all posts

Friday, May 15, 2015

Bipolar State of Being listed as one of Healthline's Best Bipolar Blogs for the second year!



Exciting news everyone…it has just been brought to my attention that I’ve made Healthline’s list for the Best Bipolar Disorder Blogs of 2015!!! This is the second year I’ve been recognized by Healthline and well, I’m really happy about that. It’s nice to know that the work you’ve done is appreciated and ultimately helpful to others.



Here’s the review they gave my blog (which actually hasn’t changed since last year but since I never mentioned it, here it is!):

Each blogger brings a unique perspective to living with bipolar disorder. For Nicole, author of Bipolar State of Being, it’s surviving and thriving as a mom. Her insights into having this disorder and borderline personality disorder are pure inspiration. The blog should be required reading for all mothers battling mental illness.

Nicole posts a mixture of personal essays, poetry, and links to informative and useful sites. The posts are clearly a positive outlet for her, but they also provide hope and a sense of support and community for her readers.

You know, when I first started this blog, I didn’t think anyone would read it. I never intended to do it long term, but it spawned so much with just that quick decision to begin sharing with the online world. From my blogging beginning with Bipolar State of Being, I branched out and started video blogging on YouTube. I actually never intended to do that at all! I simply made a couple of intro videos for this blog, so that readers could see who I was. But my channel took off, and much like my experience with blogging, I decided to keep at it.

It’s now been 5 years and I do not regret this path at all…in fact, I would say going public has probably been one of the best decisions I ever made. I’ve come to feel comfortable in my skin and accept who I am, and that is worth more to me than anything. It’s been a long journey but completely worthwhile.

I have had so many amazing experiences and met so many wonderful people through this all, and that never would have happened had I stayed silent. It’s given me so much more insight, so much more perspective not only on what I live but the lives of everyone who is affected by bipolar or any mental health issue. I realized what a passion I have for this field, and have made it my career goal to enter graduate school so I can pursue mental health research, because it means so much to me. The experience of blogging/vlogging has been really, really great, and I thank everyone who has read, commented, emailed, shared their stories with me…everyone who has inspired me, thanked me, encouraged me…you all mean so so much to me! You truly do!!!

(And if you want to check out the list of Best Bipolar Blogs from Healthline for 2015…here it is!)



Saturday, October 11, 2014

Memory Lapses, Time Distortion and Cognitive Impairment in Bipolar/BPD & Mental Illness



As I mentioned, I’ve been in an altered state for a while, having all the multitude of things that go along with it. It’s like your world gets flipped and stretched every which way. A couple posts back I mentioned the artistic wordless video I made of what the internal feelings are like, sensory wise. The shifting colors, time speeding/slowing, blackness, erratic moods. If you’re interested, you can view it HERE.

So, I’ve been having quite a few cognitive difficulties as well as memory issues currently. This occurs with both bipolar and BPD (which I have) but also other disorders such as schizophrenia and schizoaffective.

Some might describe it as forgetfulness, which is common, but it is more than that. It’s more like a complete blank, almost like a form of amnesia. I often find myself lately walking from point A to point B and standing there without a clue as to why I am there. Just this morning I went from the kitchen to the bathroom to get something. I stood in front of my robe thinking, is this what I needed? I couldn’t figure it out. I reached in the pocket. Was it chap stick I needed? I couldn’t remember. I just stood there with a total black backdrop in my head. I couldn’t for the life of me remember at all. I decided to just go back to the kitchen. Then I remembered what I needed and went back and got it. The ironic this is, writing this now, it’s only a couple hours later and I CAN’T REMEMBER WHAT IT WAS :/ That’s how bad it is! It happens dozens of times a day, over and over and over and is incredibly frustrating.It's as if once I get to where I'm going, I have no memory or reference point at all.

Similarly related is the feeling of having time distortion. It generally goes along with the memory lapses. I know that I have had conversations with people the last few days but I don’t remember them at all or I remember just bits randomly. I just talked to someone on the phone yesterday and said “Did I already text you that?” I was sure I hadn’t. They said I did. I didn’t remember it at all even though it apparently was a few minutes prior. Later that night I thought about that conversation. I was looking through my phone, and many of the numbers I couldn’t remember even getting the calls, whether they were missed calls or had messages on them. I found the phone call of that conversation. I had thought we only talked maybe 4 or 5 minutes, just quickly in passing. The record said 19 minutes. 19 minutes? What on earth did we say for 19 minutes? I honestly don’t know. It weirds me out so much knowing there is no memory of it. I only recall maybe 2 or 3 sentences that were said. I’ve been puzzling over it but there is no answer, just a strange sort of amnesia there, like the blackness I mentioned before.

I know this all has to do with our limbic system and the complex way that structures like the amygdala and hippocampus work together. Often, outsiders (meaning people without these types of mental issues) will say things like “Oh everyone has that sometimes.” I know what they mean, because yes, everyone is forgetful at times. But not everyone has amnesia for their day to day events, and I have enough insight to realize that this is a distortion of time, place and memory, again, related to happenings within the limbic system and likely other parts of the brain as well.

People often believe that “mood disorders” like bipolar are simply emotion related, but that is untrue. They also involve, as I mentioned: sensation, perception, memory, behavior. Just goes to show how complex our brain is and how many structures interact to form what we consider “normal” or “abnormal” manifestations of behavior and consciousness.

People have mentioned that when they are altered time can seem to speed up or slow down. It is the same for me. I lose track of the day and time completely sometimes. Yesterday, the day of the above mentioned call, I know I was at home with my son for hours but can’t recall if I did anything. I know I watched him playing for a good 3 hours. But the rest of the hours somehow passed without me really being able to recall what events occurred. The things themselves become blurry or disappear and sometimes even the chronological order in which things happen seems to become muddled. I sometimes find I do not know what day it is (Monday, Wednesday, etc.) or even what month it is! I find myself looking outside puzzling over whether it’s June or October despite the fact there is snow on the ground.

The perception of things shifts. A few days back when putting my son to bed, I sat outside his room while he fell asleep (we’re working on getting him to fall asleep alone, without me sitting with him.) I was looking at the carpet and recall how it was almost like a strange hallucination. The carpet appeared to be shimmering, like someone had sprinkled glitter all over it, even though I was sitting in dim lighting. It also appeared to be shaking slightly, a light “quivering” motion like waves of static on a TV or small waves on the ocean (the motion, not the color or appearance.)

It really stinks because we all need an “anchor” to keep us rooted just in our day to day lives. Date/time/place/events, these things give us a reference point for other things. When the reference points become mixed or start disappearing it can make it difficult to make sense of anything.

Friday, October 10, 2014

External triggers are huge in bipolar and mental illness



So I finally after all these years realized that my outside environment triggers me constantly. There is this misconception in the mental health field I think that certain mental disorders are “all in the mind” or “biologically based” meaning not much influenced by outside factors. Well, that is just WRONG. Saying something is biologically based is kind of nonsense. If you want to break it down literally EVERYTHING we do is biologically based. Eating, drinking, talking, our personality traits, behavior, perceptions, sensations, every single thing about us originates in our brain and nervous system. So yes, everything can be found to have a biological basis. But that discounts the fact that we are indeed influenced by outside factors regardless of whatever our particular biology may be, whether we have this illness or that illness or NO illness. One thing that is really irking me lately is this argument about “bipolar depression” vs. “unipolar depression”. There really is no distinction. Both are influenced by internal and external factors. But instead of digressing, I wanted to talk about triggers, meaning external sources that influence mood or mental state.

I’ve noticed that I’m incredibly sensitive to outside stimuli. Lights, noise, textures, anything that relates to the senses or sensory processing affects me in a huge way. In fact, so much so that it can bring on altered mood state where there were none previously occurring.

Let me give you an example. I’ve been in the throes of some pretty extreme rollercoaster “episodes” if you will for a while. Yesterday I woke up the feeling OK – neither up nor down. I felt slightly bored as I was going through the motions of getting kids off to school, picking up the house etc. I decided to put on some upbeat music. I almost never watch TV but was in the mood for something “poppy” so I turned on MTV. Seeing people dancing and hearing the beats made my mood start rising. Well it rose a little too much, pretty fast. I got up to the edge where excitement and agitation combine.

My heart was racing non-stop, I was short of breath. I felt like I was going to have a pleasure explosion and anxiety attack at the same time. This went on for hours. I was jumping all around and just had to talk to someone, just HAD TO. I started texting random people, a couple that I barely know or don’t know at all. I was really impatient when some didn’t respond immediately and then began to feel irritated that they DIDN’T respond. Why didn’t they respond? I’M FUN!!!! LET’S TALK!!! NOW!!!

So after some people responded I was laughing and LOL’ing non-stop over my phone for a couple of hours, music still playing in the background. I’d dance and laugh and totally just surrender to the feeling of pleasure spreading through my body, sexual surges pulsing in and out.

Then some slow songs would come on and the texting would slow down. FLIP. I’d sit and start drifting off. My heartbeat would go down, and I felt tired and bored yet again. I’d go to some calm activity to try to keep from being bored. Then it would get annoying. On comes my iPod, different peppy songs. FLIP.

Back to sensation overload. I really didn’t want to feel either extreme…I didn’t want to be blah and bored and I didn’t want to be so overly excited or agitated. I was completely influenced by the music and the conversations.

Eventually the day went on and I did my chores. I showered. My husband got home from work. I immediately dragged him into the bedroom for wild sex. I got dressed, we ate dinner. He watched the kids so I could get out of the house. I got in my truck and listened to some music and found myself giddily driving and completely distracted. I went to run some errands. I got to the store and wandered aimlessly, thoughts drifting. Texted some people to “come play hide and seek”. There was nothing to fuel my mind or body in the half dead store at night, no real stimulation or interaction, save with the cashier. I got into my car with a slight headache, went home. Was tired and blah when I got back. Hyperactivity = gone. I picked up a tiny bit and just went to sleep.

I see how everything around me was a trigger. Either a trigger to go up or a trigger to come down. The more stimulation I had, the higher I rose and the less I had the more I drifted down.

It’s an interesting observation, one that I have noted consistently over the course of the last year. So, if you’re reading this and have the same issues, keep an eye on the stuff around you. Beware that you aren’t unduly causing (or severely exacerbating) your own moods. Yeah I know, easier said than done, ha.

What does bipolar FEEL like?



I’m going to try to get through this post, I wanted to write it last night but was so tired and had such a headache I just went to bed.

So, firstly, I really hate the mental health diagnostic system they have (i.e. the DSM). Even when you read about mental disorders in textbooks or other descriptions they simply read like a long list, and it really does no justice to the actual feelings and the actual experience of it. For example, a book might say,

“People with bipolar have the following symptoms: 
  Elated mood
  
 Irritability

         Distractability

         Impulsive behavior”

Ok, well, that can encompass a LOT. That’s like saying “I had a good day today.” Well, describe it! What made it good? How did it feel? It seems like the only people who talk about how it feels publicly are bloggers like myself. I don’t know if I’ve ever seen a doctor really describe what a person with mental illness experiences other than the dry, bland stereotypical descriptions.

There are a couple bad things about this. 1) Everyone is constantly trying to lump themselves into these “categories”. And 2) No one really fits into those exact categories because so many people have multiple mental issues occurring simultaneously (such as bipolar and BPD, bipolar and OCD, etc.) You see the doctor and they want to figure out, are you having a manic episode? A mixed episode? Psychotic depression? Erratic mood swings from BPD? Dissociation?

The truth is there is no fine line, there is no real delineation between it all. My mood has been significantly altered lately and it has elements of all the things I’ve listed above. If I were to try to distinguish over the past week (or more) what “state” I was in I doubt I could. Maybe therein lies the problem. There really is no one “state”. Every state is simply a combination of many things you experience. I realize that we all must call it SOMEthing for the sake of clarity but in my view, I’d like to be as accurate as possible. So for now it involves just describing it all. Most would probably describe me as “manic” right now, but I think “altered” is more accurate.

Two nights ago I made an art video of what it FEELS like to live in this manner. I’d been wanting to make a professional movie like this for years and finally realized I could just use the programs I had on hand to at least give it a shot. I’d be going through all these mood states/mental disturbances and I wanted people to see not just the stereotypical list of symptoms but to see what it is like within our minds when these things occur, what the experience is like internally. If you’re interested in viewing, follow the link to watch ALTERED

Bipolar mania - misconceptions about symptoms



So, I’m going to describe a bit of what has been going on with me a little here and more in upcoming posts/videos, hopefully I can because I fully realize that my mind is not functioning as it should right now. It is very hard to concentrate.

I don’t know when this most recent period began. My moods have been fairly erratic the last few months, and I now realize they are often triggered by outside factors. I no longer see my bipolar/BPD/anxiety/depression as discrete “disorders”. I see them as a combined form of 1 thing where at times, one comes to the surface while others recede. However currently I’m literally experiencing almost everything a human can simultaneously.  So instead of referring to a particular disorder I’m simply going to address what I’m experiencing.

The textbooks always talk about those “stereotypical” behaviors – promiscuity, impulsive spending, reckless driving, yadda yadda yadda. It’s safe to say I’ve experienced most of those textbook things. But the thing I hate is they never describe what is going on internally when a person is doing those things – what drives them to do it, what their internal state is like. They generally just address outward behavior or “symptoms”.

I went off meds in January of this year. So it’s been almost a year without them. Like most people who have taken psychoactive meds, I don’t like doing it. (Post for another time). I was willing to accept the fluctuations and deal accordingly. In the last week my anxiety symptoms and mood fluctuations have become quite severe to the point that unfortunately, I have resorted to taking some medication again to try to tame it to the point that is manageable. I don’t mind going through the ups and downs. But when it gets to the point that my mind is so confused/erratic/discombobulated, I literally have a breakdown of mental functioning. I’m on my second day of resuming Zyprexa and waiting to see how that goes. It tends to work quickly. Here are a couple things I’ve noticed over this year (off meds).

        1) I have had far more elevated periods than depressed periods. Often, the feelings actually combine. I wouldn’t call that a “mixed” episode as doctors like to do, because it does not involve simply 2 mood states of elevation and depression. It literally involves every emotion possible. Yesterday a friend asked how I was feeling and I said “I feel like everything at the same time.” I was angry, happy, sad, anxious and excited ALL SIMULTANEOUSLY. I could not separate out one feeling and say “This is how I feel.” Needless to say, it can then cause a great deal of confusion within a person’s mind (as it did to me.)

                     2)  I’ve also noticed that I’m particularly sensitive to triggers in my environment. I’m far more affected by sensory input than I once realized. It is frustrating because it can cause a pretty serious dysregulation of mood. I have to try to find ways to mediate my surroundings which can be difficult. I cannot tune out all the triggers or become “immune” to them. Which sucks.
                  3)  Altered mood states for me involve just about everything. One misconception about bipolar or other similar mental illnesses are that they involve just MOOD or EMOTIONS. Not true. It involves a distortion of – time, memory, behavior, thought processing and others as well as emotion. So basically, it’s “the whole shebang.”

So I’ve been feeling a lot of – well, everything! It can be beautiful and horrible at the same time. Overwhelming feelings of pleasure mixed with intense feelings of agony, periods of confused elation, agitated elation, agitated anger. Periods of memory and time lapse, and dissociation from my mind and body, both heightening and depression of my nervous system. Well, it can make you an interesting person to be around or talk to, but it can be exhausting to experience it, both physically and mentally. It’s like living a constant paradox.

Monday, August 25, 2014

It's time for a change: Bipolar State of Being is now Lit

Hey guys, so I've been needing to change the title of this blog for a couple of months but waffled on what to change it to. I knew I didn't want it solely devoted to bipolar anymore. I used to use it mainly in a journal type fashion, documenting my life and the day to day happenings, moods, what not. I realized that I had so much more to say, and have moved in a direction away from that type of blogging. Now I'm focusing more on well thought out essays rather than quick updates and snippits. I guess you could say, I'm getting SERIOUS about it now! :)

I'm now going to be focusing a lot more on the psychological, sociological, spiritual and societal aspects in life. I plan to spend a lot of time discussing mental health issues, God, my personal experiences and the way all of this stuff collides together. I think so often we get caught up in one aspect of life to the exclusion of everything else. In reality, we aren't compartmentalized like that. It's not like I have all these "slices" that correspond to Nicole:Mom, Nicole:Bipolar, Nicole:Borderline, Nicole:Christian, Nicole:Writer, etc. Those are all parts of me, but I am a whole person, and so is everyone out there reading this blog. I think in order to truly understand ourselves we have to see ourselves in a WHOLE sense...not just pieces here and there. Everything is related to everything else, and it's really interesting for me to explore it all. In fact, if you've noticed I am blogging much more now because that is just how my mind works. It is always going, even when I'm not "having an episode". In fact I am in a completely neutral mood state now. I just always have a lot going on in my mind. I figured I might as well share my insight with others rather than let it ruminate around in my head where it does no good (except to me, hehehe.)

So that's the direction I'm going. I spend so much time journaling, researching, reading and having interesting dialogues with people about these "big" things that I think it's worthwhile to share.

And as for the name change, I simply reverted back to the blog title I originally chose when I signed up with blogger back in 2010. I had chosen Lit, as in, lit up; a fire (that refers mainly to my mental state of course, and not lit, as in literature, although I guess that could be an interesting play on words since this is a blog. Ha.)

I know it's kind of a flip from what my previous followers are used to so I hope you'll all stick around to hear more than just my sad complaints :)

AND!!! Since I changed formats, I can now get comments! (I never could in my old format because some kind of error was going on.) So yeah, comment away if you feel so inclined.

Sunday, August 24, 2014

Replacing NEGATIVE messages with POSITIVE ones in BPD/borderline



I want to discuss negative messages and positive messages when it relates to BPD, and how important these two concepts are.

All throughout life, I’ve gotten more negative messages than positive ones. The following are some of the terrible messages I actually heard from various outside sources, mostly people I loved or was close to, (occasionally by acquaintances or strangers). Some of these I heard repeatedly or over long periods of time:

“You’re too sensitive.”
“You’re insecure.”
“You’re not special.”
“So-and-so is better than you.”
“You’re selfish.”
“You look weird.”
“You’re unattractive when you sleep.” (This is verbatim.)
“You’re too needy.”
“You’re anti-social.”
“You have no self-esteem.”
“You’re bossy.”
“You’re boring.”
“You’re a burden.”
“You cry too much.”
“You need plastic surgery.”
“You’re too skinny.”
“You’re a nag.”
“You’re a whore/slut/bitch.”
“You’re easy/sleazy.”
“You’re a horrible person.”
“You’re crazy.”
“You just want attention.”
“You’re doing it to yourself” (this in response to telling the person that I was depressed, while crying).
“What’s WRONG with you???”
“I hate you.”

Yes, those are all real phrases that people said, and I can remember some of the explicit events where the words hurt me so much I never forgot them (hence the ability to make this list). Others happened a lot and became just a conglomeration over time. But, these were comments occurring over the course of my whole life, not just in childhood. Some of these got reinforced so much I came to BELIEVE they were true, even in the face of obvious evidence to the contrary.

Were they true though? Of course not. I know that logically now. The people saying them were just people – people with flaws and problems of their own. I see now that often the things they said were just their own insecurities projected onto me. I didn’t know that then though. I didn’t really understand much about how the mind works or how people think.

I gave these people a measure of authority in my life though, either because they were family members or friends or lovers or teachers or people I cared for. Even when the messages came from strangers, they were painful though. No one likes to be criticized, no one likes to hear negative feedback, especially unsolicited.

Most of my life I was a quiet, conscientious girl, a helpful and caring person. I did well in school and I received many awards. I was affectionate and loving. Certainly not the type of person who would warrant such harsh words and treatment from others, which made it that much more painful to me. “I’m trying so hard…” I would think. Yet, according to people around me, it wasn’t good enough. But I didn’t know any better…I internalized it all. It BECAME true. It BECAME the reality. It BECAME who I was, and who I believed I was. I wanted to believe in the “real” person inside…that loving, sweet, gentle little girl…but how could I? I got told too often how bad I really was.

It’s safe to say, messages such as that from numerous close people are not conducive to building a proper self-model and self-esteem. Their beliefs became my beliefs. I was ugly, a worthless burden, too aggravating to live. How can a person who lives with those internal feelings NOT be depressed? What reason is there to live when those you look up to make you believe that you are nothing? It’s no surprise that those with BPD are among the highest suicide rates of any mental illness. When a highly sensitive person hears/sees/is made to believe these negative messages, it introduces a blackness, a toxin into that person’s soul that grows and grows.

We become conditioned, like Pavlov’s dogs (who were trained to salivate at the sound of a bell) or the subjects B.F. Skinner studied that became conditioned to a stimulus and reacted accordingly (look up Skinner or behaviorism if you aren’t familiar with the ideas.) Some of the behaviors associated with BPD are learned responses, not something there from birth, which is really important and worth noting.

A person who does not receive much if any positive feedback will naturally seek it out somewhere, and sometimes by any means they can for self-preservation. It can manifest in different ways. Changing appearance to be more attractive and gain positive attention, sleeping with random people in order to FEEL loved or wanted, “perfecting” our abilities so that others will not be able to hold any flaw against us, withdrawing or avoiding relationships so that others do not see the supposed flaws (those are but a few examples). None of these actions are about the other person, they are about us. But these things hurt us in the end. They don’t get us what we want. In superficial ways they may, for a very short time, but they don’t last. What we want is true understanding and caring and love. Someone to say, “You aren’t ugly, you’re beautiful,” and to sincerely mean it or “I love that you’re sensitive. That is the thing that is most precious to me.” That doesn’t make a person needy or weird to desire those things. It makes them human.



I think I would have continued on forever believing all the bad messages. But finally, I realized they were wrong. It didn’t happen overnight by any means. It took a lot of time and a lot of work and a lot of outside affirmation. I will be honest. It took years to even have some modicum of self-worth. 
 

I now see the importance of positive messages, positive reinforcement and encouragement. Children respond more to “Great try, let’s make another!” than “That looks terrible, do it again.” They respond more to affirmation than punishment. But even beyond just children, all people need love, they need caring, support, warmth. When it is lacking, it causes severe mental distress and can indeed lead to mental issues later in life.

I am not “cured” of any of my mental illnesses, and I have periods of extreme depression and suicidal ideation still (in fact I have been going through hell the last few days). But after a day or 2 of feeling this way, I realize I have to get up. I remind myself why I cannot just give in, and there are so many reasons why. I can’t leave my children motherless. I can’t leave my pain behind for others. I want to contribute more to the world. I can’t let “the darkness” inside (and outside) win. And I shouldn’t listen to those voices in my head that return, or the disgusted faces I sometimes see or the insensitive incidents. I cannot allow others callous words and actions to ruin my life. I am worth much more than that - to myself, to my children, to God. No I'm not perfect. But nobody is. I am Nicole, and I am finally learning that it's OK to be me.