I don't need fixing

I’m a roll with my blogging again. You know, I don’t think I’ve been this active on my blog since I first started it! I got really busy with my vlogging on YouTube and didn’t write much. I stopped journaling then also. Now I’m back into both and it is really fulfilling. I know YouTube reaches a wider audience, and I will still make videos but there is just something special about the written word…I don’t know why.

BEWARE!!! This post may be pretty triggering and upsetting to some. So, you have been warned.

So I’m going through a transition period. I’ve changed my YouTube channel name from Bipolar State of Being to Nicole For Real. Why? Because there is more to me than bipolar. Because honestly, I’m not sure I even view myself as “mentally ill” anyway. I don’t think I do. Being mentally ill implies that I have a disease, a “sickness”. Does having more intense moods than an average person qualify me as “sick”? Actually, in this country, yes. Sadly, I bought into it for a long time. I think I’ve gotten a lot of crap messages from people and society that told me I was defective and needed fixing. And I believed them. I thought I needed to fix myself, and I tried REEEEAAAAAAALLLLY hard to do that, to do all the things those people asked.

Grow a thicker skin and stop being so sensitive.

Quit being melodramatic.

Deal with it.

Quit complaining.

Take your meds.

Try harder!!!

Wow, so there is a lot to address there. Let me make a little list.

1)     Sensitivity. Sensitivity is not a character flaw, like many people try to make it seem. It is actually in many cases as asset. People who are sensitive, well, SENSE more. We feel more deeply, love more passionately, empathize wholeheartedly. I think most of this country at least, could benefit from a large helping of sensitivity. In ways it can be painful to feel such heightened emotions but it ways it is like enlightenment. So, do I believe I am flawed and need to “quit it”? Errrrrr, no. At times it causes me pain but at times it causes me intense joy.

2)     The med issue. Ok, this is huge and too big to get into it all now. But in short, I used to believe what everyone said, that I NEEEEED meds, that meds will make me better, that to be “responsible” I HAD to take them, etc. etc. etc. Never mind that they all had horrible side effects and a lot of the time, no real positive effects. But, you NEED them, “that’s what the doctors say!!!!” And we all know, the only people who are capable of making choices, being intelligent, or using their God given reasoning ablilites are doctors *insert sarcasm*. Certainly, “mentally ill” people have no right to challenge THE DOCTORS!!! Ok, so I didn’t. I deferred to them, the “professionals” I sucked it up, I ate the little white pills like a good girl should. Hmmm, those didn’t work. Try these. Now these. Now these. Now these. Oh, come on, one of these is bound to work!!! But…but…wait. Four years later, I wasn’t any better off than when I started! HUH????????

3)     Societal expectations. Alright so this is sort of a combination of the above two. Here’s how it works. We (the patient, the person, the one experiencing the moods, however you would like to describe it) have some difficulties functioning. We become depressed, or anxious, or Maybe suicidal. We, or others we know, insist that we seek help. What do we need help with? The terrible feelings we feel, learning how to deal with these feelings, trying to figure out what exactly we can do to STOP feeling these terrible feelings. We fit the criteria, and so we have a “disorder”. Now that we know we aren’t normal, and everyone else becomes aware that we aren’t normal, we have to do something. We have to fix it. We treat disorders by medicating them, right? 

So forgive me, I didn’t mean this to sound as scathing as it does (upon rereading) but it comes from a real anger.

So let me simmer down a bit and address in a more calming manner. What is my point here? My point is that people with bipolar disorder, depression, anxiety, BPD, (indeed, most mental illnesses) just WANT TO FEEL BETTER WHEN WE ARE DOWN. At times, we are grasping at straws, just trying to keep our heads afloat (yeah, I’m mixing metaphors there.) Many of us are actually relieved to GET the diagnosis of the disorder because now we are validated, our pain has been validated. All those people who told us to suck it up have been thwarted, they don’t have a leg to stand on because the medical community tells them it is “real”. You know what the saddest thing is? That people, as a whole, are so insensitive, that they need the medical community to TELL THEM that depression/anxiety/intense moods are real!!! I guess that is the really staggering thing to me.

Our society seems to be shining the spotlight on mental illness more, and in previous times, it was helpful. After all, anyone dealing with any sort of mental issue knows that what we really want is validation, acceptance, love, caring, empathy, NOT to be turned into somebody else. And often (depending on the issue), this can help more than medication. Some medications have been shown to be almost totally ineffective, yet they are still prescribed and touted as the way to treat certain mental illness. DOUBLE HUH??? Why??? Because that is the current idea in society. Take the little white (or blue, or red) pills and your life will get better. That’s the message we all hear, and we have to believe because we are offered no alternative. And don’t even think about mentioning God or spirituality. You will be labeled as even more severely ill than before. Because no mentally sane person could believe in God! *insert more sarcasm* Here, take more white pills, quick!!!

Now, back to my harping on society, and how we want validation, acceptance, love and empathy. It is because WE ARE HUMAN BEINGS not because WE ARE “DEFECTIVE” “SICK” OR “ILL”. Every single person on earth wants those things, especially when they are going through hardships! I personally am really tired of the patronizing labels. Many people with mental illness are intelligent, talented, charismatic, witty, outgoing, sensitive, or a host of other positive attributes. It’s anecdotally known (and I’m sure that I could dig up research as well) that people tend to seek help when they are in low periods. During these periods we describe our lives in the blackest of terms because that is how we truly feel. But when the period passes, our energy comes back to us, we may be positive and cheerful and going about our daily lives as usual. Some things may be long lasting, but virtually no mind is paid to any sort of social factors in our lives that could be affecting us (Are we having marital problems? Job issues? Money troubles? Kids suspended from school?) No, it’s just because we are sick. If we took enough white pills, we could cope with our cheating spouses and being laid off and having insane debts and kids acting out. Darn it, we are weak, we have diseased brains, that’s why we have problems and we need those pills!!! (Oh, and by the way, here is half my salary to pay for the pills that run $600 for a month supply. I just paid $20 a pill to feel crappier!!! TRIPLE HUH???)

People really seem to fall into two camps when it comes to the mental illness issue. They think either A) it isn’t real and that people are exaggerating or making things up or B) it is extremely serious and that you must treat any “mentally ill” person with kid gloves, or like they are a child or invalid. Now, neither one of these is really correct. Granted, I’m sure there are some people who exaggerate (not just illness but anything) and I’m sure there are people who are incapacitated or unable to function independently most of the time. But I believe many “mentally ill” folks like myself fall somewhere in the middle.

So let’s take me as an example. I’m not even sure how “severe” I would be classified as. It’s like the saying “When I’m good, I’m REALLY good, and when I’m bad, I’m REALLY bad.” Is that an indicator of severity? Does having more “severe” moods warrant special treatment above and beyond a “normal” mentally ill person? Now we’re getting into weird semantic categories that just get murky and confused and have people battling within their own communities over who is “worse off”. Holy cow, that is not one I want to win (although, to my chagrin, I at once believed I needed to!)

I am in no way demeaning anyone who has a mental illness (as it is currently called). When I first started moving away from all these negative messages that society is meting out, I was met by hostility by many in the mental health community, which saddened me. I think they perceived me as blaming people with mental illness or as attacking them and saying “Man up!” But I’m not. I’m doing the opposite. I’m saying, by golly, we have been sold a lie and we deserve MORE than that. We deserve more than hollow promises by medical professionals, more than patronizing pats on the back. We want UNDERSTANDING. We truly want to FEEL GOOD and not BAD. I am tired of being DEFINED by an “illness”. We even are guilty of propagating it ourselves. Look at what I titled my blog for Pete’s sake! We call ourselves “bipolar people” “depressed people” “borderline people” “anxious people”. We are human beings. Bipolar is not me. I am not bipolar. I am Nicole. I have ups and I have downs. Maybe I'm a bit eccentric. I am creative and loving and yes, intense. But I am not broken. And I don’t need fixing.

(And if you don’t agree with me, and you think I am a wackjob, that is your preprogative. If you are happy with your meds and doctors, you have my full support. I’m not criticizing anyone who chooses to take this path or continue on it. It is a personal choice for each individual and up to them to decide whether it is worthwhile or helpful. If it is, I encourage you to continue and do not listen to me. I’m speaking my own personal thoughts and experiences, and what I have seen and heard within the online mental health community for several years.)

My big news...and my how fast kids grow

It has been quite some time since my last update...about 3 months or so. And yes there is a reason for that. For those of you who don't know I found out at the end of July that I AM PREGNANT. That's right folks...there is a mini-me growing in my belly as I type this.

It was a total and complete shock to me. We weren't planning on having any more kids. I just remember looking in the mirror and thinking "God, I've gained weight...I am getting fat." It occurred to me that my period was late and so I took an old home pregnancy test that I had lying in a drawer. I couldn't tell if it was positive or negative. I went to the store and got more and took about 5 more tests. They all came back positive. Talk about giving me the shock of my life. My first pregnancy was planned, so the feeling of being taken off guard and shocked that way was completely foreign to me. I didn't know what to think or how to feel at all. I actually think I was in denial for awhile.

So, from that moment on things have changed. I went off Zyprexa the day I found out I was pregnant. I do not want to take medication during pregnancy, especially one that has not been well studied and could potentially harm my child. So it was literally a split second decision. I'm pregnant? No more meds.

I didn't have much time to let things sink in because about a week after I found out I became sick as a dog. I'm talking the worst sickness you have ever seen. I would throw up at least 5 times a day, sometimes up to 10 times a day, EVERY SINGLE DAY. I couldn't keep down any food or even water. My husband said he had never seen anyone throw up that much in his life. Not only that, I was getting awful, almost migraine headaches constantly where I couldn't stand light or sound. I was 100% miserable and depressed. I was so sick and so weak that I would wake up, drag myself to somehow get my kids breakfast, and lay on the couch with the TV playing the whole day. And anyone who knows me knows I am NOT a TV watcher. But there was nothing else I could do. Thankfully my kids are old enough that they would occupy themselves the majority of the time playing together. I can't imagine what it would have been like if I had 2 year olds that I had to take care of 24/7. I was so sick that several times my husband had to come home and take care of me and the kids. My dad, who is retired, did the same. He came over several times and picked up around the house, made me soup or would just take the girls out for awhile so I could rest.

About a month and a half in we went on vacation. Not because I wanted to (I didn't, and if we could have gotten out of it, we would have). But because it had been planned for a year and already paid for. No refunds. And we weren't about to lose out on thousands of dollars. So, sick as I was, we took our kids and went for 2 weeks. Needless to say it wasn't that great! I tried to put on a happy face for everyone but a week in, I said screw it. I feel terrible and I shouldn't have to pretend anymore.

After we got home, and it had been about 2 months since the sickness started, the vomiting started easing up. And with that, my attitude started to improve too. Currently, I'm about 17 weeks along (that's a little over 4 months and almost 1/2 way through the pregnancy.) I'm doing better than I was, healthwise, but still get sick a couple of times a week. Even though I don't vomit as much I am nauseous most of the time and the majority of food repulses me. So I don't eat much at all.I'm a bit worried about the baby not growing from a lack of nutrition but I do the best I can.

So that is the big news and my life is certainly changing in big ways now. I've had a couple of ultrasounds and was told they thought it was a boy. Haha! I am a terrible guesser. My first pregnancy, I thought I would have a boy. I got identical twin girls. This time I thought girl for sure, and they are telling me boy. I give up! I have felt the first movements about a week or two ago, and that is neat. At this point the baby is about the size of an apple they say. It's crazy to know that I'm going about my days and there is a little person chilling inside of me. Haha.

I was nervous at first about the whole pregnancy for so many reasons. I was nervous I wouldn't be able to handle the change since it was unplanned and seemed so sudden. I was nervous about going off meds, and how my body would react, and whether I would have serious episodes or not. And I was worried about the health of the baby because my first pregnancy had A LOT of complications and my children were very premature and sick when they were born. So for a long time I had constant worries and fears.

But, to my amazement, I am doing a lot better now! Just in the past 3 weeks or so I have noticed a huge change in my mood. I am no longer depressed. But I am not manic either. I actually feel NORMAL. It is a weiiiiiiiiiiiird feeling. I haven't felt this good in a long long time. Seems like pretty much from the onset of my first full blown manic episode 2.5 years ago, I was just riding a rollercoaster constantly. I was so confused so much of the time. Overall, I was not very happy. I isolated myself and muddled through the best I could.

Now, I feel positive again, I feel like the normal Nicole again. I find myself looking forward to things and planning things. I find that I am more capable of doing things and I don't feel as stressed. I guess, in a word, I feel STRONGER. Mentally stronger. Like even if my house crashed down around me, I would get through it. Like I said, my attitude is so much better than it has been. And I can only hope that it continues.

So that's what's been going on, quite a bit. Winter is here now and the snow has fallen. I think it will go quickly though because of the pregnancy. And its funny...I sometimes don't realize how much time has gone by until I look at my kids. Today, they put on nearly all their snow gear by themselves, and went outside in the backyard to play. It was quite strange to me, them being independent enough to do that. I tend to measure my kids according to seasons, maybe because that is when the change is obvious...when summer and winter first come. I looked at them today and thought "Last year, they couldn't do this. Last year, they still needed help dressing and they couldn't be left outside alone." Now I see how much they have grown and changed and it seems so fast. I don't know where the time goes...where our lives go. It is bittersweet.

That's the news and I'm sticking to it. Hope everyone settles into the season and enjoys the upcoming holidays.

Still trying to make sense of bipolar diagnosis - want to go back to life as it was

A brief update – went to see my psychiatrist yesterday. I told her what was going on and she said she wasn’t sure if I was rapid cycling or not. I guess only time will tell. She didn’t really agree with my counselor about the mixed state, she said that she thought it was a part of the mania I’ve recently been experiencing. Ugh. Who knows! Just one more confusing thing. It’s like, where does one thing stop and another begin? There is no line of demarcation. It’s all miscellaneous criteria that is written down in a manual by people who do not experience these things and therefore, how much could they really know? Maybe it really doesn’t mean anything at all. Again, who knows. I could go back and forth all day.

She agreed that my meds probably were not working well and that I should go back on the anti-psychotic meds…I can’t go back to Risperdal, although it worked well, because of side effects. So now, starting today I am trying Seroquel. It’s supposed to be sedating, just like Risperdal. We’ll see if I can handle it or if it makes a difference.

As you can tell I’ve started video blogging too, I’m digging watching other people’s stuff on YouTube also. It’s so helpful to know others are out there experiencing the same stuff. And knowing others can relate to my situation also feels good…I know I’m not totally alone.

I’m not sure when the next time I’ll post will be. In a way all this talking is helping me but in other ways I feel like I’m going around in a circle. I talk to my psychiatrist, my counselor, people around me, then there are my own thoughts to contend with…it tends to add to the confusion rather than simplify. I’ve been having a lot of conflicting thoughts today, one being that I feel the diagnosis of bipolar is really starting to define me, and I don’t want that. I had a lot of “normalcy” in my life before about a year ago…it wasn’t like I was in a perpetual state of confusion and flux. I want to go back to that. I wouldn’t have even gotten treatment had it not been for my spiral out of control. I always dealt with things myself, and that’s pretty much what I want to do again, just take things out of other peoples hands and put them back into my own.

I get so caught up in going to doctors every week or two that it doesn’t help much…in fact I feel like I’m talking so much I’m only making myself worse! Everyone tells you “monitor your moods” and “pay attention to warning signs” and all this other stuff, and it’s sort of like, you have to be on constant guard and I don’t like it. I mean really, what’s the deal with being a little “up” or a little “down”? I think that unless I’m so up that I’m literally “off the map” as my psychiatrist says, or so depressed I want to kill myself, that I should just forget about everything else and go about my life. A part of me doesn’t even want to keep taking meds. I want to just remove this label of bipolar and return to the time when I was contently ignorant. I want to return to my life as I knew it. Ahhhhh…I could go on forever. But I won’t :)

NORMAL day, random junk, and IE SUX!

I wasn’t planning on blogging tonight but I’m up so what the heck. I’ve been up working on school work, and dang…I am so ready for this class to be over. Right now this lesson is over drug prevention programs which I personally think are a crock. No offense if anyone believes in them. I just personally feel if someone is going to drink/smoke/do drugs, for the most part nothing is going to stop them. And from what my textbook says, most prevention programs don’t work. LOL…seems like a lost cause…

Anyways here’s some random junk on my brain. For those viewing this blog on Internet Explorer, sorry if it looks fudged up, from what I hear, it’s a problem with both IE and youtube as far as blogger, so dunno, but use Firefox and you shouldn’t have the problem. :)

I’m actually having a pretty NORMAL day today, wow!!! Pretty crazy how it fluctuates so quickly. It’s almost like being in a normal state isn’t even “normal” for me anymore since it does not last long…it’s almost just like one of three states that are in constant flux. I went out walking, which I enjoy doing at night sometimes. I live in a small town so it’s no biggie. It was weird though because it was like a total ghost town when I went out tonight. It’s getting darker and colder and the sky was almost black. The streetlights kept the sidewalks somewhat lit but on the sideroads there was no light…it was total darkness except for flickering of the lights of the oil refinery in the distance. It was a little surreal…there was literally not a soul walking but me. Very rarely a car would go by. Most people’s lights were off in their houses. Kinda made me think about how really, I feel most comfortable when I’m alone. A little sad maybe, but true. And I’m ok with that.

Anyhoo, I had written down the other day a bunch of things I wanted to write in my journal, which I still need to…it’s kinda funny, here is what my list says: organizing, shells, IE, my own house, poems, scatterbrained, crushes. HAH! I have no idea why I wrote half that down or what I was even thinking about it!!! I guess I really was “scatterbrained”!!! Today, I’m quite clear headed. The perpetual voice inside is quiet. I have a little bit of peace…for now. :)

Let’s see what other random things…I’m pretty sure we live next door to swingers, which is hilarious. They are a married couple with two small kids close to my kids age. Well since I moved in with my dad (about 9 months ago) the guy is always looking over/through the fence at me and I’ve had several odd incidents with him (once I just turned to find him standing behind me in our backyard, totally just walked in uninvited and scared the crap out of me…a lot of times he’ll come over to talk to my dad when he knows I’m outside too…just weird.) Now his wife is starting to do the same stuff with Tim…haha…finding little excuses to talk to him, come over and give him this, ask for help with that…she never did that with my dad, now she is all over Tim. It is frickin’ hilarious. So we’ve come to the conclusion that they are swingers trying to get with us. Who knows, maybe it’s true!!! Either way, they are an odd couple. I’ll be glad when spring comes and we’re out of here into our own house.

Oh, I guess that’s the other thing. We went to the bank to do a mortgage application to look at houses a bit before snow falls. We planned on buying in the spring but wanted to get our feet wet now. So we did that and somewhat have a realtor now, it’s totally exciting, I’ve been fantzsizing about my own house since I was 18…only taken me 10 years! It’s slowly becoming a reality…

So that’s it I suppose for now…always something going on around here, whether it’s around me or in my brain…haha. Oh yes, I am still totally digging my whole new persona…when I went to the liquor store the other day the cashier looked at my license forever and then said “That’s not you!” it was so funny because I had literally said to Tim earlier in the day that if anyone saw my ID they probably wouldn’t think it was me, guess I’m right. Ha. Point being, I’m digging it all big time, I’m loving this phase…not sure how long it will last til I’m onto the next thing.

I have to post a pic of my new trend, I’m totally into falsies right now, there are so many sweet ones now that it’s Halloween almost. Here are my faves…silver…allllllrighhhhhht *Quagmire voice*