I don't need fixing

I’m a roll with my blogging again. You know, I don’t think I’ve been this active on my blog since I first started it! I got really busy with my vlogging on YouTube and didn’t write much. I stopped journaling then also. Now I’m back into both and it is really fulfilling. I know YouTube reaches a wider audience, and I will still make videos but there is just something special about the written word…I don’t know why.

BEWARE!!! This post may be pretty triggering and upsetting to some. So, you have been warned.

So I’m going through a transition period. I’ve changed my YouTube channel name from Bipolar State of Being to Nicole For Real. Why? Because there is more to me than bipolar. Because honestly, I’m not sure I even view myself as “mentally ill” anyway. I don’t think I do. Being mentally ill implies that I have a disease, a “sickness”. Does having more intense moods than an average person qualify me as “sick”? Actually, in this country, yes. Sadly, I bought into it for a long time. I think I’ve gotten a lot of crap messages from people and society that told me I was defective and needed fixing. And I believed them. I thought I needed to fix myself, and I tried REEEEAAAAAAALLLLY hard to do that, to do all the things those people asked.

Grow a thicker skin and stop being so sensitive.

Quit being melodramatic.

Deal with it.

Quit complaining.

Take your meds.

Try harder!!!

Wow, so there is a lot to address there. Let me make a little list.

1)     Sensitivity. Sensitivity is not a character flaw, like many people try to make it seem. It is actually in many cases as asset. People who are sensitive, well, SENSE more. We feel more deeply, love more passionately, empathize wholeheartedly. I think most of this country at least, could benefit from a large helping of sensitivity. In ways it can be painful to feel such heightened emotions but it ways it is like enlightenment. So, do I believe I am flawed and need to “quit it”? Errrrrr, no. At times it causes me pain but at times it causes me intense joy.

2)     The med issue. Ok, this is huge and too big to get into it all now. But in short, I used to believe what everyone said, that I NEEEEED meds, that meds will make me better, that to be “responsible” I HAD to take them, etc. etc. etc. Never mind that they all had horrible side effects and a lot of the time, no real positive effects. But, you NEED them, “that’s what the doctors say!!!!” And we all know, the only people who are capable of making choices, being intelligent, or using their God given reasoning ablilites are doctors *insert sarcasm*. Certainly, “mentally ill” people have no right to challenge THE DOCTORS!!! Ok, so I didn’t. I deferred to them, the “professionals” I sucked it up, I ate the little white pills like a good girl should. Hmmm, those didn’t work. Try these. Now these. Now these. Now these. Oh, come on, one of these is bound to work!!! But…but…wait. Four years later, I wasn’t any better off than when I started! HUH????????

3)     Societal expectations. Alright so this is sort of a combination of the above two. Here’s how it works. We (the patient, the person, the one experiencing the moods, however you would like to describe it) have some difficulties functioning. We become depressed, or anxious, or Maybe suicidal. We, or others we know, insist that we seek help. What do we need help with? The terrible feelings we feel, learning how to deal with these feelings, trying to figure out what exactly we can do to STOP feeling these terrible feelings. We fit the criteria, and so we have a “disorder”. Now that we know we aren’t normal, and everyone else becomes aware that we aren’t normal, we have to do something. We have to fix it. We treat disorders by medicating them, right? 

So forgive me, I didn’t mean this to sound as scathing as it does (upon rereading) but it comes from a real anger.

So let me simmer down a bit and address in a more calming manner. What is my point here? My point is that people with bipolar disorder, depression, anxiety, BPD, (indeed, most mental illnesses) just WANT TO FEEL BETTER WHEN WE ARE DOWN. At times, we are grasping at straws, just trying to keep our heads afloat (yeah, I’m mixing metaphors there.) Many of us are actually relieved to GET the diagnosis of the disorder because now we are validated, our pain has been validated. All those people who told us to suck it up have been thwarted, they don’t have a leg to stand on because the medical community tells them it is “real”. You know what the saddest thing is? That people, as a whole, are so insensitive, that they need the medical community to TELL THEM that depression/anxiety/intense moods are real!!! I guess that is the really staggering thing to me.

Our society seems to be shining the spotlight on mental illness more, and in previous times, it was helpful. After all, anyone dealing with any sort of mental issue knows that what we really want is validation, acceptance, love, caring, empathy, NOT to be turned into somebody else. And often (depending on the issue), this can help more than medication. Some medications have been shown to be almost totally ineffective, yet they are still prescribed and touted as the way to treat certain mental illness. DOUBLE HUH??? Why??? Because that is the current idea in society. Take the little white (or blue, or red) pills and your life will get better. That’s the message we all hear, and we have to believe because we are offered no alternative. And don’t even think about mentioning God or spirituality. You will be labeled as even more severely ill than before. Because no mentally sane person could believe in God! *insert more sarcasm* Here, take more white pills, quick!!!

Now, back to my harping on society, and how we want validation, acceptance, love and empathy. It is because WE ARE HUMAN BEINGS not because WE ARE “DEFECTIVE” “SICK” OR “ILL”. Every single person on earth wants those things, especially when they are going through hardships! I personally am really tired of the patronizing labels. Many people with mental illness are intelligent, talented, charismatic, witty, outgoing, sensitive, or a host of other positive attributes. It’s anecdotally known (and I’m sure that I could dig up research as well) that people tend to seek help when they are in low periods. During these periods we describe our lives in the blackest of terms because that is how we truly feel. But when the period passes, our energy comes back to us, we may be positive and cheerful and going about our daily lives as usual. Some things may be long lasting, but virtually no mind is paid to any sort of social factors in our lives that could be affecting us (Are we having marital problems? Job issues? Money troubles? Kids suspended from school?) No, it’s just because we are sick. If we took enough white pills, we could cope with our cheating spouses and being laid off and having insane debts and kids acting out. Darn it, we are weak, we have diseased brains, that’s why we have problems and we need those pills!!! (Oh, and by the way, here is half my salary to pay for the pills that run $600 for a month supply. I just paid $20 a pill to feel crappier!!! TRIPLE HUH???)

People really seem to fall into two camps when it comes to the mental illness issue. They think either A) it isn’t real and that people are exaggerating or making things up or B) it is extremely serious and that you must treat any “mentally ill” person with kid gloves, or like they are a child or invalid. Now, neither one of these is really correct. Granted, I’m sure there are some people who exaggerate (not just illness but anything) and I’m sure there are people who are incapacitated or unable to function independently most of the time. But I believe many “mentally ill” folks like myself fall somewhere in the middle.

So let’s take me as an example. I’m not even sure how “severe” I would be classified as. It’s like the saying “When I’m good, I’m REALLY good, and when I’m bad, I’m REALLY bad.” Is that an indicator of severity? Does having more “severe” moods warrant special treatment above and beyond a “normal” mentally ill person? Now we’re getting into weird semantic categories that just get murky and confused and have people battling within their own communities over who is “worse off”. Holy cow, that is not one I want to win (although, to my chagrin, I at once believed I needed to!)

I am in no way demeaning anyone who has a mental illness (as it is currently called). When I first started moving away from all these negative messages that society is meting out, I was met by hostility by many in the mental health community, which saddened me. I think they perceived me as blaming people with mental illness or as attacking them and saying “Man up!” But I’m not. I’m doing the opposite. I’m saying, by golly, we have been sold a lie and we deserve MORE than that. We deserve more than hollow promises by medical professionals, more than patronizing pats on the back. We want UNDERSTANDING. We truly want to FEEL GOOD and not BAD. I am tired of being DEFINED by an “illness”. We even are guilty of propagating it ourselves. Look at what I titled my blog for Pete’s sake! We call ourselves “bipolar people” “depressed people” “borderline people” “anxious people”. We are human beings. Bipolar is not me. I am not bipolar. I am Nicole. I have ups and I have downs. Maybe I'm a bit eccentric. I am creative and loving and yes, intense. But I am not broken. And I don’t need fixing.

(And if you don’t agree with me, and you think I am a wackjob, that is your preprogative. If you are happy with your meds and doctors, you have my full support. I’m not criticizing anyone who chooses to take this path or continue on it. It is a personal choice for each individual and up to them to decide whether it is worthwhile or helpful. If it is, I encourage you to continue and do not listen to me. I’m speaking my own personal thoughts and experiences, and what I have seen and heard within the online mental health community for several years.)

External triggers are huge in bipolar and mental illness

So I finally after all these years realized that my outside environment triggers me constantly. There is this misconception in the mental health field I think that certain mental disorders are “all in the mind” or “biologically based” meaning not much influenced by outside factors. Well, that is just WRONG. Saying something is biologically based is kind of nonsense. If you want to break it down literally EVERYTHING we do is biologically based. Eating, drinking, talking, our personality traits, behavior, perceptions, sensations, every single thing about us originates in our brain and nervous system. So yes, everything can be found to have a biological basis. But that discounts the fact that we are indeed influenced by outside factors regardless of whatever our particular biology may be, whether we have this illness or that illness or NO illness. One thing that is really irking me lately is this argument about “bipolar depression” vs. “unipolar depression”. There really is no distinction. Both are influenced by internal and external factors. But instead of digressing, I wanted to talk about triggers, meaning external sources that influence mood or mental state.

I’ve noticed that I’m incredibly sensitive to outside stimuli. Lights, noise, textures, anything that relates to the senses or sensory processing affects me in a huge way. In fact, so much so that it can bring on altered mood state where there were none previously occurring.

Let me give you an example. I’ve been in the throes of some pretty extreme rollercoaster “episodes” if you will for a while. Yesterday I woke up the feeling OK – neither up nor down. I felt slightly bored as I was going through the motions of getting kids off to school, picking up the house etc. I decided to put on some upbeat music. I almost never watch TV but was in the mood for something “poppy” so I turned on MTV. Seeing people dancing and hearing the beats made my mood start rising. Well it rose a little too much, pretty fast. I got up to the edge where excitement and agitation combine.

My heart was racing non-stop, I was short of breath. I felt like I was going to have a pleasure explosion and anxiety attack at the same time. This went on for hours. I was jumping all around and just had to talk to someone, just HAD TO. I started texting random people, a couple that I barely know or don’t know at all. I was really impatient when some didn’t respond immediately and then began to feel irritated that they DIDN’T respond. Why didn’t they respond? I’M FUN!!!! LET’S TALK!!! NOW!!!

So after some people responded I was laughing and LOL’ing non-stop over my phone for a couple of hours, music still playing in the background. I’d dance and laugh and totally just surrender to the feeling of pleasure spreading through my body, sexual surges pulsing in and out.

Then some slow songs would come on and the texting would slow down. FLIP. I’d sit and start drifting off. My heartbeat would go down, and I felt tired and bored yet again. I’d go to some calm activity to try to keep from being bored. Then it would get annoying. On comes my iPod, different peppy songs. FLIP.

Back to sensation overload. I really didn’t want to feel either extreme…I didn’t want to be blah and bored and I didn’t want to be so overly excited or agitated. I was completely influenced by the music and the conversations.

Eventually the day went on and I did my chores. I showered. My husband got home from work. I immediately dragged him into the bedroom for wild sex. I got dressed, we ate dinner. He watched the kids so I could get out of the house. I got in my truck and listened to some music and found myself giddily driving and completely distracted. I went to run some errands. I got to the store and wandered aimlessly, thoughts drifting. Texted some people to “come play hide and seek”. There was nothing to fuel my mind or body in the half dead store at night, no real stimulation or interaction, save with the cashier. I got into my car with a slight headache, went home. Was tired and blah when I got back. Hyperactivity = gone. I picked up a tiny bit and just went to sleep.

I see how everything around me was a trigger. Either a trigger to go up or a trigger to come down. The more stimulation I had, the higher I rose and the less I had the more I drifted down.

It’s an interesting observation, one that I have noted consistently over the course of the last year. So, if you’re reading this and have the same issues, keep an eye on the stuff around you. Beware that you aren’t unduly causing (or severely exacerbating) your own moods. Yeah I know, easier said than done, ha.

Correlation between Mania and Anxiety

My anxiety has been high for quite some time now. I’ve actually been having panic attacks often. I think that that underlying anxiety plays a big part in mood fluctuations. The physiological state of anxiety actually is not much different from the physiological state of being excited (happily). Both can cause: restlessness, a jittery feeling, racing heartbeat, racing thoughts, shortness of breath. The only difference is that anxiety is manifested in fearful behavior such as paranoia/irritation/anger whereas excitation is manifested in behavior like sensory seeking/risk taking/euphoria.

I noticed this back in April and made a video journal about the correlation between anxiety states and elevated or “manic” states.

So currently, as I said, my anxiety has been quite high. However the physiological symptoms I mentioned above fluctuate with regard to whether it manifests as fearful anxiousness or excited elation. It cycles back and forth, back and forth over the course of the day. At times the anxiety comes out as a panic attack, then it will flip on a dime and become excited elation and I will start to compulsively do things. Something to get into in another post.