The Return of the Blog (Blogger…Blogging…)

Well, everyone, hello again! Writing this blog today is like reaching out to a long lost friend. It’s been about 5 years or so since I really blogged in earnest. Why? Well, so much happened in my life that prevented me from doing it. Even now, there is a lot of difficulty but I’m making the effort to return and resurrect this blog (and myself???) If anyone is even still there and listening, thank you friends!

So, let me break down what happened since I last posted, in ohhhhhh May of 2015! Let’s do a fun little timeline…

1) I was a psychology student at university, in the middle of a nasty contested divorce with 3 young children, and my health was tanking.

2) In early 2016, my divorce and child custody was finalized. I got diagnosed with an autoimmune disease. Because of the divorce, I went through a period of not having health insurance, which sucked since I suffered a lot of health setbacks at that time.

3) I met and dated a lot of people. It turned out to be generally, more stressful than fun. I had no desire to get into another serious relationship and was just passing the time with people.

4) In late 2016, I sold the house that my ex and I had lived in, and began living with my dad in the interim while I was finishing school.

5) In late 2017, I moved into an apartment with my kids, graduated college with a B.A. in psychology, and got a job offer to teach counseling skills and the psychology of addiction at the community college, which I accepted.

6) Early 2018, I began part-time teaching (and a lot more learning ensued along the way!) My health was still poor, but I was doing my best to muddle through. I had a lot of random illness and couldn’t yet find a cause for it/them.

7) Mid 2018, I went to Florida to decide whether or not I was going to move there. I decided against it at the time, and stayed in my home state.

8) Late 2018, I knew that part-time teaching wasn’t a stable enough job to take care of my kids and began looking for full-time work. I needed a job to work around them and their schedule, and I decided to go through the process of becoming a grade school teacher. To do so meant entering graduate school for a year to get certified, and possibly go on to finish a Master’s degree in education.

9) Early 2019, I went through the process and was accepted into graduate school in a program for a Master of Education degree. I was also admitted for a year long internship for my teaching certification. My health was still poor, and getting worse, but I was trying to stay positive that it would improve.

10) Mid 2019, after declining steadily for years, I became so ill I was bedbound. Being alone, with kids, and supposed to start graduate school, I was terrified of what was happening to me, and beginning to get hopeless. I had to quit teaching, quit graduate school, and move in with my ex-husband for help with the kids and day to day living. It was an extremely dark time for me. I questioned my entire purpose in living and why I was even existing on this earth.

11) Late 2019, I was diagnosed with ME/CFS, Myalgic Encephalomyelitis, previously known as Chronic Fatigue Syndrome. It was a relief to get a diagnosis, but in ways even harder, since there are no known cures for it and treatments are hit or miss. I spent the better part of a year not working, and trying to figure out my physical limits of what I could do so I could return to work. I knew teaching was not feasible anymore because of the physical demands of it.

12) TODAY! Mid 2019, my health has improved some and I’ve figured out some ways to work with/around my limitations. I’m back to looking for work and ready to be independent again! My kids are now 12 (twins) and 7, and becoming more independent themselves, which is helpful in allowing me to be able to do things for myself instead of devoting all my spare time to child care.

SOOOOOOOOOOO….a lot has happened! Surviving the day to day life. It’s not easy. Never has been. But I keep trying to find the silver lining in every cloud and the light at the end of each tunnel. It may sound cheesy but I’m always telling myself these mantras or sayings, and they do help me through my days and weeks when things are a difficult struggle. One of my favorites is “This too shall pass.”

That’s all for now folks. Just a quick check-in and a beginning, a place to start anew here and explore a whole host of new topics. Lord knows, after my last 5 years, I’ve got fodder to last for a really long time!!!

Summer is flying by - divorce is consuming my time & mental state! UGHHH

Hi guys!

Wow, it’s been awhile. I hadn’t realized it’s almost 2 months since my last posting. Life tends to fly by sometimes when you aren’t paying attention, doesn’t it?!?!

The school year ended in May and so I was just relaxing for a few weeks (my brain was completely strained from the math course I took…I am no math wizard! Haha.) I had so many plans of school related things I wanted to get done this summer:

       Study and test out of my next math class

       Study and test out of my humanities class

       Study for and take the GRE (Graduate Record Exam – Grad school admissions test)

       Get involved in volunteer activities in the psychology community in my city

WELLLLL…since my divorce is now beginning the legal process, that has been so stressful to me that unfortunately, over the last month I have been able to accomplish nearly nothing on that list :( It makes me so sad!!! Between dealing with my ex and his mood swings, dealing with kids (who are themselves out of school for the summer), and trying to sell half my belongings and move out of my house so I can sell it, school hasn’t exactly been my top priority.

There is a lot going on you can see. My head is kind of swirling most of the time and I feel quite overwhelmed, like there is a lot hanging over my head. I HATE that feeling. I am a list maker, a checker-offer. I like knowing I accomplished things and have them under my belt. Stuff that hangs in limbo…leaves me feeling anxious :/

So, that is where I am now! Summer is half way down and it is my goal to AT LEAST test out of my math class, at the bare minimum. The rest of the school stuff may have to wait. I’m in a bit of a rush to get my house on the market, hopefully a month from now, so there is a lot happening.

My mental state is….OK. I go on meds and I go off them…that is just the nature of things I guess. Once my divorce is final (it seems to be getting dragged out slowly and painfully, unfortunately) I think my mental state will improve drastically. No longer being attached in any way to a toxic relationship will help me so much to move forward and try to make positive changes in my life. Right now I’m still sort of dangling in limbo-land while things are not finalized. And that is the toughest part!!!

Bipolar State of Being listed as one of Healthline's Best Bipolar Blogs for the second year!

Exciting news everyone…it has just been brought to my attention that I’ve made Healthline’s list for the Best Bipolar Disorder Blogs of 2015!!! This is the second year I’ve been recognized by Healthline and well, I’m really happy about that. It’s nice to know that the work you’ve done is appreciated and ultimately helpful to others.

Here’s the review they gave my blog (which actually hasn’t changed since last year but since I never mentioned it, here it is!):

Each blogger brings a unique perspective to living with bipolar disorder. For Nicole, author of Bipolar State of Being, it’s surviving and thriving as a mom. Her insights into having this disorder and borderline personality disorder are pure inspiration. The blog should be required reading for all mothers battling mental illness.

Nicole posts a mixture of personal essays, poetry, and links to informative and useful sites. The posts are clearly a positive outlet for her, but they also provide hope and a sense of support and community for her readers.

You know, when I first started this blog, I didn’t think anyone would read it. I never intended to do it long term, but it spawned so much with just that quick decision to begin sharing with the online world. From my blogging beginning with Bipolar State of Being, I branched out and started video blogging on YouTube. I actually never intended to do that at all! I simply made a couple of intro videos for this blog, so that readers could see who I was. But my channel took off, and much like my experience with blogging, I decided to keep at it.

It’s now been 5 years and I do not regret this path at all…in fact, I would say going public has probably been one of the best decisions I ever made. I’ve come to feel comfortable in my skin and accept who I am, and that is worth more to me than anything. It’s been a long journey but completely worthwhile.

I have had so many amazing experiences and met so many wonderful people through this all, and that never would have happened had I stayed silent. It’s given me so much more insight, so much more perspective not only on what I live but the lives of everyone who is affected by bipolar or any mental health issue. I realized what a passion I have for this field, and have made it my career goal to enter graduate school so I can pursue mental health research, because it means so much to me. The experience of blogging/vlogging has been really, really great, and I thank everyone who has read, commented, emailed, shared their stories with me…everyone who has inspired me, thanked me, encouraged me…you all mean so so much to me! You truly do!!!

(And if you want to check out the list of Best Bipolar Blogs from Healthline for 2015…here it is!)

- Healthline Best Bipolar Blogs of 2015 -

Wallowing

Well, here I am. I’m in a mood today. I just feel like wallowing. I can feel that my emotions are quite raw at the moment, and it seems every sound I hear, and every sight I see is just like a heavy putrid syrup pouring over my heart and mind, coating it with stickiness I can’t get rid of. I could try to fight it and put on the fake smile but I just don’t want to right now. All I want is to sit and ruminate for awhile. And just let it be. I want to look at the white sky and the snow and float off. Listen to this melancholy music and watch the parade of images that dance in slow motion across the backdrop of my skull. Allow it all to occur, all the words that I don’t want to make sense of…just let them come. Lie around and do absolutely nothing of any worth. Wallow and bathe myself in these feelings that engulf me. Let them be and do not try to fight them.

It’s ok, because deep down I know it will not last forever. In a couple days, I will rise again. I will come up, I will get back on the horse and live again. I’ll keep striving toward the light. But not today.

Rapid cycling, depression, mania, mixed, it's everything! Blaughhhhh

My eyes are completely burning. I realized I haven’t posted much other than poetry for awhile now so here I am. I have a headache. It’s been a really long day. This may be partially incoherent. I’ve been prefacing a lot of my interactions with people that way lately. Oh well.

So I think it’s safe to say that I have been up for a large portion of the last 6 months. Which is all well and good with me, and in ways is enjoyable. But now, it’s starting to go into this rapid cycling/mixed type stuff, which is not so enjoyable. However, it is reality, so I figured I should document it.

A few months ago my husband and I separated again. Then in January, I started school again. So, there has been a lot of stress and just a lot of demands on me physically and mentally. So that’s just a quick background leading to today.

Stuff is sort of a big jumbled ball right now. One minute I’m bouncing around with the energy of 10 men (ok, women) and the next I’m tired and dazed. For a few days I’ll get very little sleep and be just fine and dandy, and then it switches and I will barely have the energy to get through the day without falling asleep, and on top of that, when I do sleep, it will feel like I could KEEP sleeping for a whole week or more. The constant energy fluctuations are hell on me.

One day I’ll be talking to everyone who crosses my path and listening to everyone’s stories and the next day (literally, the next day) I’ll be sullen and walk into class and not say one word to a soul. I’ll just want to sit and wallow and ruminate. But then hours later, or the next day, I pop up again, and will be laughing and jumping and all of that crazy stuff.

I go from being able to concentrate well in class and “get” the material to being completely distracted, unable to concentrate at all, finding the material confusing and getting bogged down by it, and then stuff just falls through the cracks.

Now the ups I certainly like. But I DON’T like the downs mixed in there. In fact, the fact they are even there at all is kind of starting to make me a bit angry. Also the constant flip/flip/flip like a metronome is starting to wear on me. On top of it, I think I’m starting to notice a few psychotic type things happening and so that is raising a red flag to me. In the past, when I have had longer periods of mania that have psychotic elements, it kind of has the same pattern. Things begin to rise and then I just become more erratic to the point where everything gets confused and meshed together and it becomes hard to distinguish. I visualize it as a ladder, and each day I go up and down the steps and can be at any height at any time not only day to day, but throughout the day as well.

So, lately, I have had the idea of meds on the brain off and on. I really really do not want to take them. So I’m holding out to see if I can manage another couple of months. Once May hits my stress load will lower dramatically because I will be out of school for the summer and I’m sure that will help some.

This wasn’t super detailed because I really just am too tired and headachy to think much. But, wanted to explain a bit of what’s been going on recently. I know my videos have been fluctuating between depressed/rambling/dejected and overly happy/hyper so this was just my quick explanation of recent events.

Awareness is crucial in managing bipolar disorder off meds

Our circumstances can make us depressed. Seems like a fairly obvious statement, yes?

Sadly though, this fact is overlooked in the mental health field a lot, and even in our own personal lives. I know after being diagnosed with bipolar, I started to buy into all the messages out there – I NEEDED meds, it was bipolar that was making me depressed, I should monitor my moods so that I could alter my meds, etc. Sure, I had counseling but it mainly focused on – bipolar! Everything in a round about way came back to bipolar. I thought I was gaining clarity by listening to these messages. After all, these doctors and nurses and counselors were the experts, right?

During that time I was making videos a lot and still journaling so I have a lot of detailed accounts of how I was feeling and what was going on in my life. It is amazing to me looking back how unaware I was the vast majority of my life! I had a great deal of INSIGHT into my FEELINGS but very little AWARENESS of WHY I felt that way. I made one video about depression in 2010 and how nothing was going on in my life to make me depressed, and that it must have been bipolar. Yet, I was completely unaware of my surroundings and how they were affecting me.

During that particular time I made that video, I recall exactly what was going on, and my life was NOT going great at all. My husband and I were having major conflicts. It had been going on for months though so I think I just discounted it as having an effect on me, when I now see it was one of the main causes of my depression. Also, we were living with relatives at the time which was becoming stressful. We were looking for our own house, also stressful. I was taking care of twin 2 year olds, stressful. I can’t believe I didn’t take all that into account when looking at my mental state and the way it would fluctuate!!! I just thought, ohhhh, it’s bipolar…that stinks…maybe tomorrow would be better. In a way it kept me from addressing things in my life that were affecting me, because I was putting too much emphasis on the wrong things (bipolar/biological/medical problem) and not enough on other things (relationships/family life/stress level).

I guess I felt compelled to make this blog today because I think the current message in the mental health field is doing a disservice to those diagnosed with depression or bipolar. Here is my 2 cents…

I believe that many mental illnesses (including depression and bipolar) begin with an inherent sensitivity. This is something currently being researched in the mental health field and I do believe this is barking up the right tree, so to speak. I believe this sensitivity makes a person more likely to be affected by external stimuli. This can then manifest as many different things – anxiety, depression, mania.

For example – take an average person and a person with bipolar. Put them in a situation where they are going through a break-up. The average person will feel sad and maybe even depressed. The bipolar person may dwell on it incessantly, feel suicidal, perhaps even attempt suicide. The same stimuli but much more intense emotions related to that stimuli. (Keep in mind this is just a random example, of course this isn’t true of every average person or bipolar person! I’m just making a generalization.)

So, if I were to go to my psychiatrist and tell them all this, (in my fictional example) one of the first things they would be concerned with is: medication! Upping meds, changing meds, etc. They have the viewpoint that these things must be dealt with by pharmaceuticals. I used to believe that and I went along with it all. Now, I feel differently.

So many times over the course of my treatment, everything got lumped under the category “It’s because you have bipolar.” Is it? Well, no not really. Does being depressed because I have marital conflict mean it’s related to bipolar? Hardly. If I addressed the bigger issue (marital problems) could I help mediate the effects on my “illness”? I say yes.

Bipolar or not, we are all human beings. We feel low when we get divorced, lose a friend, have a family member that dies, lose a pet. Now, those are BIG things. But even little things affect us too. Having a stressful day at work. A sick child. An upcoming deadline. Interpersonal conflict. Too often, these things are not addressed in psychiatry or in counseling as far as ways to cope with these issues in healthy, non-medical means. Somehow, everything always comes back to an illness, even if it is a legitimate problem. To this day, within the bipolar community, whenever I say things that others view as extreme, they caution me that I must be having an episode. I deeply appreciate the care and concern. But it really goes to show just how ingrained the idea has become even within OURSELVES and TO ourselves that mental illness is WHAT we are. That we are helpless. That we cannot change or improve without meds. That any sort of variation means we better get some new meds, pronto, and that will help our situation.

Now, I think at times, medication plays a role but that often, when we learn to be aware of ourselves, our moods, our surroundings and WHAT is causing these feelings we can address them in a more pro-active way. Many people in the mental health system (including myself) did everything “right”. We went to counseling, we took the meds, we followed the regime for YEARS. But that is only addressing one small piece of the puzzle. We are multi-faceted individuals and must deal with our lives in a holistic manner, instead of focusing everything on ONE THING – our illness. That doesn’t help us, but instead keeps us trapped in a cycle we can never get out of. I often wondered WHY I wasn’t getting better despite doing all the “right” things (and believe me, I have heard the same thing from others about a million times! People want to know WHY these meds aren’t fixing their depression or their mood swings, WHY they aren’t getting better. Ultimately it can lead to a worse feeling of depression, because on top of the initial depression, there is depression for having “failed” to get better.)

I am now almost a year off meds and am so much more aware of myself than I was at the beginning of my mental health journey almost 5 years ago, and I am so thankful for that. Like I said, I could identify my feelings but not WHY I felt that way. I now understand: all the variation of mood, how various social cues trigger my moods or affect them (positive or negative), how the behaviors I engage in affect me, how all of this affects others. It’s not something that occurs overnight but is a learning process that occurs over time and with observation. Does that mean I’m now “fixed”? No. But it puts me ahead of the game because I can anticipate things before they happen. I can be prepared. I minimize the chances of being caught off guard. When bad things do happen, I can learn from them and try to adjust things/situations in the future. I know my weaknesses and limitations and try to take those into account when making plans or scheduling particular outings or things of that nature. For example, I now know that working hard on something can trigger elevated mood or “mania” for me. So, I don’t avoid working hard, but if I notice signs, I can either enjoy the ride or if it becomes extreme, back off and try to do calming activities to mediate the excitation happening in my brain. If I start feeling depressed and notice I’m ruminating on negative thoughts, I can purposely cut off the train of thought and engage in something more uplifting – some happy music, or watching a funny video, or talking to a close friend. If I weren’t aware of the effects of my environment on me, I couldn’t do any of these things! Awareness is SO important. I think it is THE most important thing in dealing with mental illness, period.

So my advice to anyone new to the mental health system or newly diagnosed is this – FIRST, take stock of your own life. No one knows you like YOU. You are the best advocate for yourself. We may like the idea of a fairy godmother or white knight swooping in and fixing us or fixing our lives but that isn’t reality. We must be our own advocates in life. Understanding yourself better can help you understand your moods and ways of coping or self-medicating (drugs/alcohol/self-injury/bingeing/social withdrawal, etc.) that are unique to you. You can in turn begin to address these things. SECOND – Don’t believe the hype. Even if you’ve been diagnosed with bipolar (or even if you just think you may have it) not everything about you is “because you have bipolar”! Bipolar in itself doesn’t make a person inherently – quiet, loud, obnoxious, generous, loving, selfish or any other thing. We all have to accept that we have our own traits regardless of bipolar. Don’t fall into the trap of believing “I’m a thrill seeker…it’s because I have bipolar!” or “I don’t like people. It’s because I have bipolar.” Not only is that boxing yourself in, but some of it isn’t even true (bipolar is simply a tendency for extreme mood experiences and shifts.) While you may be able to say you’re a thrill seeker while in an elevated mood state, if you’re like that all the time, it’s just your personality. (I’m going to go ahead and say that most people realize a lot of their own personality traits, good or bad. We don’t all admit them openly to others though!) Lumping all these things under the heading of “bipolar” may make you feel better for a while and you may feel validated that it’s not all in your head, (I know I did) but eventually it will consume you. Bipolar will become the only thing you see about yourself and in a weird way, it becomes a self-fulfilling prophecy. You believe you’re nuts and so you act nuts, so people treat you nuts and so you believe you’re nuts…It will make you feel worse and not better. And that isn’t what any of us want, bipolar or not.

LASTLY, Many times, bipolar or not, addressing the true issues in life can bring more happiness than simply relying on a pill. There is no miracle pill to cure bipolar or depression. But healing starts with AWARENESS. A person can never change something they are unaware of. If you walked around with spinach in your teeth all day and never looked in a mirror, would you think to floss your teeth right away? Probably not. You wouldn’t even be aware of it. But if you thought to yourself while you were eating your salad that you better head to the bathroom after you eat and make sure your pearly whites were white instead of green, you’d head off any unforeseen embarrassment. Point is, be aware. Aware of YOURSELF, aware of what is AROUND you. Notice how things affect you, what your particular “weaknesses” are, what triggers your moods (both down and up). Is it having too much to do in a short time? Is it dealing with money troubles? Relationship troubles? Is it being involved in a cool class? Experiencing something new? Really take a step back and assess your own life. You can be your own best friend or your own worst enemy. Only by truly looking at yourself as a whole can you begin to understand how to take steps that will bring the improvements you seek.